IPSO Blog
IPSO Blog
Writing ‘Walsy’: A Journey of Love, Learning, and Advocacy
By Sarah KourkjieanWhen I began working on Walsy, a graphic novel series inspired by my son, I wanted to create more than just a story—I wanted to spark conversations around empathy, inclusion, and the unique experiences of children with disabilities. My son was born...
Finding Reliable Information about Pediatric Stroke Rehabilitation: Information Education Pages, the other IEP
By Todd J Levy, MS, OTR/L, CBIST-APThe internet provides vast information about rehabilitation for children. Like most topics, information ranges from reliable and useful to nonsense and dishonest. Professionals can turn to peer-reviewed journal articles for vetted...
IPSO 2024 Congress Recap
By Jenny Wilson, MDThe second in-person IPSO congress was held in Toronto, Canada March 22-24. First, a little about the IPSO congress history. Because of COVID, the inaugural IPSO congress was virtual and the first in-person congress took place in 2022. This year’s...
Summer Camp for Pediatric Stroke Survivors
By Tricia PlumbHow can physicians, medical providers, children, and families come together for a few days of education and fun for everyone? Enter Morgan’s Wonderland in San Antonio, Texas, an accessible camp for children with disabilities. Last summer, I went to this...
Great Expectations: A Bright Future for Vein of Galen Malformation (VOGM) Treatment
By Mesha Martinez I remember the experience like it was yesterday. I stood outside in the dark, talking to the child’s mother on my phone while the child’s anxious father and other family members crowded around me. As I took off my mask, I was glad that the darkness...
Treating Two “Puffs of Smoke” in the Brain — What is the best approach for operating on children with bilateral moyamoya arteriopathy?
By Michael Xie and Risheng XuLiterally meaning “hazy” or “like a puff of smoke” in Japanese, the term “moyamoya” is also the name for an arteriopathy that causes narrowing of the arteries of the brain. This restriction of blood flow leads to the formation of many...
Reflections on the 2023 IPSO Meeting
By Jenny WilsonIPSO had its 3rd conference virtually, April 28-29th, 2023. The goal of the conference was to “unify the global community of professionals engaged in research and clinical care for children with cerebrovascular diseases, and chart a path forward for...
Interview with Dr. Peter Sporns, author of the Save ChildS Study
By Nidhi Ravishankar & Arpita Lakhotia.The Save ChildS study1 is the first retrospective, multicenter cohort study that analyzed databases from 27 stroke centers in the United States and Europe suggesting comparable safety data for endovascular thrombectomy (EVT)...
Deficiency of adenosine deaminase 2 (ADA2), what are we missing?
By Ariane Soldatos & Amanda Ombrello. Case: A previously healthy 14-year-old patient presents with a small stroke in the basal ganglia following upper respiratory symptoms. You do the usual vascular, cardiac and thrombophilia work-up which is unrevealing. You...
Hemorrhagic Stroke in Childhood: News and Views in Managing Cerebral Vascular Malformations
By Mesha Martinez. At the inaugural in-person IPSO Founding Members' Congress held in Vienna, Austria, the session "Hemorrhagic Stroke in Childhood: News and Views in Managing Cerebral Vascular Malformations” was co-moderated by Dr. Mesha Martinez. Below is a vivid...
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