Research Studies & Opportunities
Photo Credit: Helen Carlson, Ph.D, Alberta Children’s Hospital
IPSO Members’ Research
Introduction
The International Pediatric Stroke Organization aims to support and promote collaborative research on pediatric cerebrovascular disease. IPSO will serve to facilitate connections amongst investigators with similar research interests. Please fill out the submission form if you would like your collaborative research study listed on the IPSO website.
Australian Paediatric Acute Code Stroke (PACS) Study
Enrolling | Intervention | Multicenter | Murdoch Children's Research Institute & The Stroke Foundation The Stroke Foundation is partnering with Murdoch Children’s Research Institute and researchers, health professionals, industry and patients to transform the care of...
COL4A1/2 Natural History Registry
Research Study Type (Registry, Observational, Clinical Trial, Other): Registry/Observational Research Status (In Development, Enrolling, Analysis): Enrolling Site Type (Single Site, Multi-Site): Single Site Variants in COL4A1/2 are increasingly recognized as a cause...
EPIC-LVO
Research Study Type (Registry, Observational, Clinical Trial, Other): Prospective pilot study Research Status (In Development, Enrolling, Analysis): Enrolling Site Type (Single Site, Multi-Site): Multi-site EPIC-LVO is a prospective pilot study assessing the...
Research Studies on Recovery of Language and Cognitive Skills after Pediatric Stroke Washington, DC, area
In our ongoing work, researchers at the Center for Brain Plasticity and Recovery (CBPR) at Georgetown University Medical Center in Washington, DC, are studying the effects of childhood stroke on cognitive and language abilities. Drs. Elissa Newport, William Gaillard,...
Vein of Galen Malformation Genetics Research Consortium (VOGM-GRC)
| Enrolling | Observational | Multi-Center Site | Andrew T. Hale & Jesse Jones | Vein of Galen malformations (VOGMs) are the most common and severe neonatal blood vessel anomaly of the human cerebral vasculature. VOGM are the result of abnormal connections between...
The International Paediatric Stroke Study (IPSS): A highly successful study vehicle for paediatric stroke research on a global scale
By Nomazulu Dlamini and Alexandra Linds. The International Paediatric Stroke Study (IPSS) was established in 2003 through a visionary collaboration of 11 international colleagues with expertise in paediatric stroke. For over 15 years, the IPSS has served as the...
Investigating Outcome Prediction and Rehabilitation from childhood stroke via the use of EEG brain connectivity assessments
| In Development | Observational | Single Site | Kartik Iyer, Michaela Waak & Karen Barlow | Predicting clinical recovery in childhood stroke is highly challenging due to the complex nature of injury. Outcomes in these children remain unclear until months after...
Pediatric Intracerebral Hemorrhage (PICH)
| Analysis | Observational |Single Site | Grégoire Boulouis, Thomas Blauwblomme, Manoelle Kossorotoff and Olivier Naggara | The PICH study aims at delineating candidate biomarkers to develop targeted therapeutic strategies to improve outcome of children with...
Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
| Enrolling | Clinical Trial | Multi-site | StrokeNet NIH | Sharon L. Ramey & Warren Lo | This is a Phase III clinical trial to compare the efficacy of two dosages of a new infant rehabilitation protocol - I-ACQUIRE - to usual and customary forms of infant...
Vascular effects of Infection in Pediatric Stroke II (VIPS)
| Enrolling | Observational | Multi-site | NIH | Heather Fullerton | VIPS II is an international multi-center NIH funded study that proposes to enroll 200 pediatric stroke cases and 200 pediatric stroke-free cases. Biological specimens, imaging, parent interviews and...