History & Accomplishments
History & Accomplishments
March 2024
The IPSO 2024 Congress took place on March 22nd-24th, 2024 in Toronto, Canada at the Hospital for Sick Children. IPSO partnered with Dr. Noma Dlamini, Dr. Peter Dirks and Dr. Prakash Muthusami to co-host the IPSO 2024 Congress. The IPSO 2024 Congress was a huge success with 250 attendees from 23 countries and 17 specialties. IPSO decided to align with the Pediatric Neurocritical Care Research Group (PNCRG), another non-profit organization with overlapping research goals and interests. The PNCRG also hosted an in-person meeting consecutively with IPSO’s event in Toronto in March 2024.
January 2024
The IPSO Education Committee launched a new education series for IPSO members called the IPSO Lecture Series. The new series will include monthly presentations on a variety of topics. Both IPSO and non-IPSO members will be invited to present. The presentations will be recorded and available for IPSO members in the IPSO Members’ Only Area.
September 2023
We have grown to over 400 members from 48 countries and representing 18 different specialties. The IPSO Board of Directors voted to switch its online membership portal to Your Membership to enhance IPSO member experience and engagement. The IPSO Kid Stroke Connections published its second issue focusing on Back to School for the Pediatric Stroke community.
August 2023
The IPSO / IPSS Tenecteplase (TNK) Task Force developed and distributed a survey through IPSO to understand the use of TNK in the pediatric stroke community. The authors received approval from the IPSO Executive Committee and IPSO Communications Committee to publish the survey results.
May 2023
IPSO has officially launched the IPSO Kid Stroke Connections, an online news periodical for patients, families, and the pediatric stroke community. IPSO Kid Stroke Connections is housed on the newly launched IPSO Community Website. The first issue was launched in May 2023 for Pediatric Stroke Awareness Month. People can subscribe to the IPSO Kid Stroke Connections via email.
April 2023
The IPSO 2023 Virtual Conference was held virtually on April 28-29th, 2023, with the help of Underline (virtual conference host platform) and Podium. The IPSO 2023 Scientific Program Committee assembled a program comprising 44 moderators, speakers, and panelists from 17 countries and 11 subspecialties. The program included six (6) scientific sessions, one (1) global perspective session, one (1) oral abstract session, and one (1) research update session. There were 30 virtual posters and IPSO offered 9.5 CME credits. There were 165 registrants from 28 countries. The IPSO 2023 Virtual Congress was sponsored by Bayer, Balt, Medtronic, Stryker, Microvention, and Cerenovus.
October 2022
The IPSO Neurointerventional Specialty Council launched its version of the IPSO Challenging Case Conference for the INR community. They also welcomed all IPSO members to join, and the conferences have been a valuable learning opportunity for all multidisciplinary members.
September 2022
As of September 30th, 2022, we have over 350 members from 47countries and 25 specialties. The IPSO Executive Committee developed the idea to launch an IPSO Newspaper. The audience of the IPSO Newspaper will be pediatric stroke survivors, advocates for pediatric stroke and other cerebrovascular diseases and medical professionals. We hope to translate research publications and abstracts into lay terms so this information is easier for non-medical professionals to understand and put in context. We are currently seeking an IPSO member to lead the initiative and hope to launch the IPSO Newspaper alongside the pediatric stroke advocate website.
August 2022
The IPSS Hemorrhagic Stroke Registry was officially launched in the summer of 2022. Expanding the IPSS registry has encouraged more international collaboration and publication development. The IPSO Hemorrhagic Stroke Working Group has drafted guidelines on hemorrhagic stroke diagnosis, treatment, and outcomes, which we hope to publish in 2024. The IPSO Moyamoya Working Group successfully developed data collection forms that are now included in the IPSS database. This working group plans to apply for additional research funding, NIH grant submission planned for 2023, to focus on moyamoya disease.
July 2022
IPSO is supporting the launch of the LVO (Large Vessel Occlusion)registry in the IPSS database, expanding the data collection fields on diagnosing and treating LVO patients.
April 2022
After many long months of planning, IPSO held the inaugural in-person at the Founding Members’ Congress in Vienna, Austria, from April 24-26, 2022. We continued to work with Podium, our conference management company, to launch a successful event. We had 100+ multi-disciplinary in-person attendees from 19 countries. There were 57 presenters either in-person or virtually. We had seven scientific sessions, two oral abstract sessions, a pediatric stroke survivor presenter, an advocacy presentation, and much more. We accepted 34 posters and held a poster session to encourage networking and collaboration. There were multiple opportunities for attendees to network amongst themselves. It was a very successful event as the first-ever pediatric stroke conference. We also decided to launch the IPSO Revenue Committee meeting, which is a subset of the Board of Directors and focuses on the financial infrastructure of IPSO.
July 2021
As of July 2021, we have over 250 members from 35 countries and 18 specialties. IPSO had to postpone the IPSO Founding Members’ Congress to April 2022 in Vienna, Austria. In the interim, we decided to host an IPSO Virtual Conference which took place on July 19th-21st, 2021, which had 200 attendees. We partnered with a virtual platform company, Underline, and our previous conference management partner, Podium, to help IPSO host the virtual conference. Due to the virtual setting, the conference was four-hour time blocks across three days. The start and end times staggered to accommodate our international representation. Instead of launching a Scientific Program Committee, the IPSO Executive Committee (EC) picked a Scientific Chair to join their efforts in planning the virtual conference.
May 2021
In May 2021, the IPSO Education Committee launched the IPSO Expert Corner Series which provides an opportunity for our members to share their expert opinions on certain topics or share their research. Moving forward, the IPSO CCC and IPSO Expert Corner Series will alternate every other month. IPSO also participated in Pediatric Stroke Awareness month by posting #pedstrokefacts on Twitter every other day and partnered with the International Alliance for Pediatric Stroke (IAPS) to promote stories from pediatric stroke survivors.
October 2020
In October 2020, this committee launched the IPSO Challenging Case Conference (CCC) Webinar Series, which created a space for members to discuss difficult pediatric stroke and/or cerebrovascular cases with an expert panel. We successfully have held five CCC’s where cases were presented from Argentina, Canada Egypt, India, Georgia and the US. The Communications Committee also launched the IPSO Literature Review Series which shares monthly reports of the latest publications in pediatric stroke and/or cerebrovascular disease around the world. The literature reviews are extremely valued by our members in lower income and middle-income countries who might not have easy access to publications online. We also feel it is a great opportunity to promote our members’ publications and research efforts. So far, this committee has reviewed and published 15 blogs which highlight various topics in pediatric neurology and promote our members’ research.
August 2020
In August 2020, the IPSO Hemorrhagic Stroke Working Group was launched alongside the IPSS Hemorrhagic Stroke Working Group. UCSF was awarded a Hemorrhagic Stroke Research Center of Excellence grant by the American Heart Association-Bugher Foundation. The goal of this study is to gather information that will help each individual child born with a brain AVM have the best outcome. There are three projects within the proposal and IPSO members lead the third project. Project 3 will expand the International Pediatric Stroke Study – which has enrolled >6,000 children with ischemic stroke –to include hemorrhagic stroke and brain AVMs. The IPSO/IPSS Hemorrhagic Stroke Working Group has also drafted the new data collection forms, drawing from those used by members for their single-center hemorrhagic stroke and brain AVM studies. Lastly, IPSO has also launched a new Moyamoya Working Group that will develop new research projects related to moyamoya disease and syndrome and the IPSO INR Council to focus on industry relationships.